We have put together a selection of useful links which may prove helpful to members. If you have come across a link you may feel is worthwhile sharing, please email our co-ordinator at

  • Down’s Syndrome Education International – works to improve early intervention and education for children with Down syndrome
  • Mencap – supporting people with learning disabilities
  • Contact a Family – support families of disabled children across the UK, whatever their condition or disability
  • Family Fund – if you’re raising a disabled or seriously ill child, you might be eligible for a grant from Family Fund
  • Special Needs Toys – Special Needs Toys, Sensory Toys, Multi Sensory Equipment and Sensory Rooms
  • Face to Face, part of Scope – connecting parents with disabled children for emotional and practical support
  • Counselling Directory – connecting you with professional support
  • NARA – The Breathing Charity– NARA is a registered working title of The National Association for the Relief of Apnoea. Many of our members have problems with their breathing and this organisation can hopefully assist many who suffer or know those who suffer from various respiratory conditions.
  • – Down’s syndrome support group for the South West. They often run workshops for schools and can come in as an Education Consultant for Cornwall and Devon Schools.
  • – glasses specifically designed for children with Down’s Syndrome. They are based in the US but Specsavers in Bodmin and Camborne are now suppliers for Cornwall.
  • Downs Side Up – an inspiring award winning blog from one of our members Hayley Goleniowska, gently changing perceptions of Down’s syndrome from within hearts
  • Positive About Down Syndrome – a website for parents by parents with stories and photos to reassure, inspire and show you the reality of life with Down syndrome
  • Ipsea EHCP Planning – Independent Parental Special Education Advice regarding EHC PLANS (Education, Health, & Care).  An EHC plan is the document which replaces Statements of SEN and Learning Difficulties Assessments for children and young people with special educational needs.

A selection of links which may prove useful to new parents

You can also download a summary of the links here including the summary of things you can start doing now regarding communication from Symbol UK

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