APPG Down’s Syndrome

CDSSG has joined an alliance to form an All Party Parliamentary Group for Down’s syndrome.

All Party Parliamentary Party (APPG) for Down’s syndrome being formed!

Over the past few years, a number of parent led organisations have been campaigning and lobbying in Parliament around issues, particularly in maternity care, that our community faces.

We discovered that there has not been an APPG for Down’s syndrome since 2015, so some of the groups have created an alliance to form an APPG. This will provide an opportunity for the views of people with Down’s syndrome and their families to be heard and addressed at Parliament. The APPG will give our community a platform to challenge some of the issues our families face and to raise awareness about living with Down’s syndrome in modern Britain.

An All Party Parliamentary Group (APPG) is a group of members from the House of Commons (Members of Parliament) and the House of Lords (Peers). It is all party because it has to have at least one member from the party in government (Conservative) and at least one from the main opposition party (Labour).

We have written to all Parliamentarians to invite them to join our APPG. 

“It would be really powerful if as many people as possible could make contact with their local MP to request that they join our APPG on Down’s syndrome. Anybody who is allowed to vote can contact their MP and request they join – so we are asking people with Down’s syndrome to write, just download the easy read version of this document to use as a template. We hope that parents, siblings, grandparents, friends, professionals – anyone and everyone who is keen that the voices of people with Down’s syndrome are heard at Parliament will contact their MP.”

We will be inviting people with Down’s syndrome to be involved with the APPG by participating in meetings and focus groups.

If you have Down’s syndrome and are interested in being involved or have a family member with Down’s syndrome who is interested, please email dsappg@gmail.com

If you can add some of your own information in the first paragraph, it makes it more relevant and powerful.

Please copy this email address into your email so we can record which MPs have been contacted. Email dsappg@gmail.com

Many thanks for your support.

CDSSG Board. 

Download Letter

Click on the links below to download & save the draft letter. Don’t forget to personalise it to your thoughts and feelings.

>> Download draft letter (pdf)

>> Download draft letter (word doc)

easy read Letter

Click on the links below to download & save the draft letter. Don’t forget to personalise it to your thoughts and feelings.

>> Download draft letter (pdf)

>> Download draft letter (word doc)

APPG Down's Syndrome Easy Read

Easy Read APPG

Click to download